475A Law & Policy Lab: Data Governance
Focus: Health Data and Learning Health Networks
Data-savvy lawyers and practitioners must be able to work across disciplines, solve modern problems, and steward organizations of all stripes through digital issues. This course focuses on digital governance: how organizations and communities make decisions about data, code, their missions, and their membership, and how those decisions can break down or reinforce systems of structural exclusion.
Here, students will learn how to design, build, and govern effective data communities. They will navigate realistic scenarios and attempt to build equitable collaborations around shared missions and values. And they will use the tools of the law to build policies, procedures, and accountability structures to ensure that stakeholder communities’ data is protected and productive, and that data outputs accrue to the benefit of all.
Health Data and Learning Health Networks
In this simulation class, law and graduate students will attempt to organize and govern a health data collaboration for Long Covid patients. Students will work with each other to role-play as hospital administrators, principal investigators, and patient advocates, and decide whether and how to collaborate and share data with one another. Throughout the semester, students will hear from practitioners building and governing health data collaborations in the field.
Our class will go beyond will go beyond negotiating a data-sharing agreement between multiple parties. Students will need to decide who should be involved in their collaboration, how it should be governed, how it should manage risks, and what policies and procedures should be in place to run the collaboration, keep data safe, and maintain trust among community members.
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Spring 2023
Course Number | Course Credits | Evaluation Method | Instructor | ||
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475A.01 | 2 |
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Keith Porcaro | ||
Focus: Health Data and Learning Health Networks Data-savvy lawyers and practitioners must be able to work across disciplines, solve modern problems, and steward organizations of all stripes through digital issues. This course focuses on digital governance: how organizations and communities make decisions about data, code, their missions, and their membership, and how those decisions can break down or reinforce systems of structural exclusion. Here, students will learn how to design, build, and govern effective data communities. They will navigate realistic scenarios and attempt to build equitable collaborations around shared missions and values. And they will use the tools of the law to build policies, procedures, and accountability structures to ensure that stakeholder communities’ data is protected and productive, and that data outputs accrue to the benefit of all. Health Data and Learning Health Networks In this simulation class, law and graduate students will attempt to organize and govern a health data collaboration for Long Covid patients. Students will work with each other to role-play as hospital administrators, principal investigators, and patient advocates, and decide whether and how to collaborate and share data with one another. Throughout the semester, students will hear from practitioners building and governing health data collaborations in the field. Our class will go beyond will go beyond negotiating a data-sharing agreement between multiple parties. Students will need to decide who should be involved in their collaboration, how it should be governed, how it should manage risks, and what policies and procedures should be in place to run the collaboration, keep data safe, and maintain trust among community members. Syllabus: 475A-01-Spring2023-syllabus.pdf1.31 MB Degree RequirementsPre/Co-requisitesNone |
Spring 2022
Course Number | Course Credits | Evaluation Method | Instructor | ||
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475A.01 | 2 |
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Jeff Ward, Keith Porcaro | ||
Focus: Health Data and Learning Health Networks Syllabus: 475A.01.Spring2022-syllabus.pdf1.33 MB Degree RequirementsPre/Co-requisitesNone |
Fall 2018
Course Number | Course Credits | Evaluation Method | Instructor | ||
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475A.01 | 2 |
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Jeff Ward | ||
The tech-savvy lawyer-leader of tomorrow must understand blockchains. Blockchains—decentralized databases that are maintained by a distributed network of computers—present manifold challenges and opportunities, including unprecedented potential to disrupt financial systems, to support civic participation and democratize access to resources, and even to change what we understand “law” to be. As this set of technologies rapidly emerges, we must consider the extent to which we allow regulation and government intervention, balancing the maintenance of social norms against the need to let a nascent technology innovate. Moving forward, as decentralized networks possibly replace centralized systems, we must find ways to maintain rule of law through appropriate legal and regulatory levers. This course aims to help each of us become active participants in these endeavors. Degree RequirementsPre/Co-requisitesNone |
Fall 2017
Course Number | Course Credits | Evaluation Method | Instructor | ||
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475A.01 | 2 |
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Jeff Ward, Aaron Wright | ||
“In 1993, hardly anybody had heard the word internet.… Yahoo was two years from its founding. Not a soul foresaw Facebook, Match.com, WikiLeaks or cat videos. Mark Zuckerberg was 9 years old. Think of the explosion and disruption that happened over the following decade. Think of how our way of life was completely changed by this internet thing. And so imagine what it means when Don Tapscott, who has been writing books and advising corporations about technology since the ’80s, says the blockchain is the next internet.” --Kevin Maney, “Trust and Verify: the Coming Blockchain Revolution” NEWSWEEK (May 23, 2016) The lawyer-leader of tomorrow must understand blockchains. Blockchains, decentralized databases that are maintained by a distributed network of computers, present manifold challenges and opportunities. Blockchains and associated technologies offer unprecedented potential to disrupt financial systems, to support civic participation and democratized access to resources, to change the way we contract with one another, and much more. As an initial matter, we must consider the extent to which we allow regulation and government intervention, balancing the maintenance of social norms against the need to let a nascent technology innovate. Moving forward, as decentralized networks replace centralized systems, we must find ways to maintain rule of law through appropriate legal and regulatory levers. This course aims to help each of us become active participants in these endeavors by providing an introduction to the salient features—both technical to some degree and social to a large degree—of decentralized computing platforms. It also offers students the chance to apply this knowledge through the development of, and possible advocacy for, a legal or policy proposal related to this topic.
Pre/Co-requisitesNone |