Study

Focus: Health Data and Learning Health Networks

Data-savvy lawyers and practitioners must be able to work across disciplines, solve modern problems, and steward organizations of all stripes through digital issues. This course focuses on digital governance: how organizations and communities make decisions about data, code, their missions, and their membership, and how those decisions can break down or reinforce systems of structural exclusion.

Here, students will learn how to design, build, and govern effective data communities. They will navigate realistic scenarios and attempt to build equitable collaborations around shared missions and values. And they will use the tools of the law to build policies, procedures, and accountability structures to ensure that stakeholder communities’ data is protected and productive, and that data outputs accrue to the benefit of all.

Health Data and Learning Health Networks

In this simulation class, law and graduate students will attempt to organize and govern a health data collaboration for Long Covid patients. Students will work with each other to role-play as hospital administrators, principal investigators, and patient advocates, and decide whether and how to collaborate and share data with one another. Throughout the semester, students will hear from practitioners building and governing health data collaborations in the field.

Our class will go beyond will go beyond negotiating a data-sharing agreement between multiple parties. Students will need to decide who should be involved in their collaboration, how it should be governed, how it should manage risks, and what policies and procedures should be in place to run the collaboration, keep data safe, and maintain trust among community members.

Spring 2023

Course Number	Course Credits	Evaluation Method	Instructor
475A.01	Course Credits 2	Simulated Writing, Transactional Reflective Writing Group project(s) Class participation	Keith Porcaro
Sakai site: https://sakai.duke.edu/portal/site/LAW-475A-01-Sp23
Email list: LAW-475A-01-Sp23@sakai.duke.edu